EB

February 28, 2023

National Epidermolysis Bullosa Awareness Week is a time to increase awareness of EB, promote the need for a cure, and to spur advocacy on behalf of the thousands of individuals and families living with EB in the United States.

#GivingTuesday is a global day of giving, fueled by the power of social media, that aims to inspire people across the globe to give back to causes and issues that matter to them.

Camp Wonder is a free summer camp for children with skin disease, ages 6 to 16. Camp Wonder is held at Camp Twin Lakes in Rutledge, Georgia. Camp Wonder covers all costs associated with camp. For more information, please visit www.csdf.org/camp-wonder.

Camp Discovery offers children living with a chronic skin condition a one-of-a-kind camp experience. Provided at no cost to the families, Camp Discovery is one week of fun for kids with conditions ranging from eczema and psoriasis, to vitiligo and alopecia, to epidermolysis bullosa and ichthyosis. Located in Crosslake, Minnesota,…

Camp Spirit Colorado is a winter adventure camp for children with one of the most severe forms of EB, Recessive Dystrophic.  It was started in 2008 for children ages 9-18 to give them the opportunity to enjoy winter activities in a safe environment.  It is located in Granby, Colorado. For…