EB Advocate

AdaptHealth Patient Care Solutions’ experience and expertise make us uniquely qualified to support those living with EB and their loved ones.

For patients, families and friends, a diagnosis of Epidermolysis Bullosa carries with it great uncertainty. Click here to learn about EB, its symptoms, treatments, and more.

All about EB

See an overview of what EB is, how it’s inherited & how it’s diagnosed


All the essentials on wound care, caring for newborns, community tips & helpful  organizations & foundations


Information on exceptional products suitable for EB wounds & skin

Contact the EB Team

EB line: 855.5EB.line
EB fax: 877-651-1957
EB email: ebline@adapthealth.com


Need EB supplies? Fill out our form.

This field is for validation purposes and should be left unchanged.

An EB representative will reach out to you. Your insurance information and physician’s name will be needed.

Helpful Resources & Information


February 17, 2023 in EB

Rare Disease Day – February 28, 2023

February 28, 2023
Read More
February 17, 2023 in EB

EB Awareness Week – Annually, October 25-31

National Epidermolysis Bullosa Awareness Week is a time to increase awareness of EB, promote the need for a cure, and to spur advocacy on behalf of the thousands of individuals and families living with EB in the United States.
Read More
February 17, 2023 in EB

#GivingTuesday – November 28, 2023

#GivingTuesday is a global day of giving, fueled by the power of social media, that aims to inspire people across the globe to give back to causes and issues that matter to them.
Read More
February 17, 2023 in EB

Camp Wonder

Camp Wonder is a free summer camp for children with skin disease, ages 6 to 16. Camp Wonder is held at Camp Twin Lakes in Rutledge, Georgia. Camp Wonder covers all costs associated with camp. For more information, please visit www.csdf.org/camp-wonder.
Read More
February 17, 2023 in EB

Camp Discovery

Camp Discovery offers children living with a chronic skin condition a one-of-a-kind camp experience. Provided at no cost to the families, Camp Discovery is one week of fun for kids with conditions ranging from eczema and psoriasis, to vitiligo and alopecia, to epidermolysis bullosa and ichthyosis. Located in Crosslake, Minnesota,…
Read More
October 17, 2022 in EB

Camp Spirit Colorado

Camp Spirit Colorado is a winter adventure camp for children with one of the most severe forms of EB, Recessive Dystrophic.  It was started in 2008 for children ages 9-18 to give them the opportunity to enjoy winter activities in a safe environment.  It is located in Granby, Colorado. For…
Read More

What is EB?

EB is a genetic disorder that results in fragility of the skin and, in some cases, other organs. Blisters and/or erosions form as a result of rubbing, trauma or even a simple hug. In some instances of EB, blisters and/or erosions occur spontaneously.

There is no cure for EB. There is only daily wound care, which can be excruciatingly painful and last for several hours. Genetic research and clinical trials are ongoing to find more effective treatments.

Blisters and erosions occur when layers of the skin fail to properly adhere. Normally, the outer layer of the skin, the epidermis, adheres to the deeper layer of skin, the dermis, through the interaction of proteins that form specific microscopic skin structures, including anchoring fibrils, intermediate filaments and hemidesmosomes. Some of these structures are in the middle layer of skin, which sometimes is called the “junction.”

The three major types of EB are defined by the location of the blister in the skin:

A fourth type of EB, known as Kindler syndrome, is classified as “mixed” because blisters may occur at any level: in the epidermis (intraepidermal), within the lamina lucida (junctional) and below the lamina densa (dermal).

Further classification of EB types depends on the mode of inheritance (dominant versus recessive); appearance and localization of blisters and erosions; and absence or presence and degree of severity of additional clinical features, such as nail dystrophy and involvement of internal organs such as the esophagus and trachea.

In general, it may be impossible to predict the subtype of EB in a newborn or infant suspected of having EB based on clinical features alone. Skin biopsy for electron microscopy and immunoepitope mapping are the first steps in the diagnosis of EB. These methods usually can suggest the subtype of EB. Immunoepitope mapping allows for more precise localization of the blister to the epidermis, dermal-epidermal junction or dermis, and may also allow for identification of the specific protein that is missing or present in reduced quantity.

Definitive diagnosis of the specific subtype of EB generally relies on genetic testing to identify confirmatory mutation(s) in one of the 10 genes associated with EB. In some patients , no genetic mutation can be identified, and it is possible that other genes also result in EB when mutated. In some cases, identification of the involved mutation(s) also can help to predict the severity of blistering and associated complications. As genetic researchers continue to study Epidermolysis Bullosa, more is learned about the disorder and associated findings.


Wound Care Products

There are thousands of exceptional wound care products available, and many are suitable for EB wounds and skin. This chart lists product categories and their properties. Click here to learn about the quality products AdaptHealth can provide.

Product Category


Fight Infection




Alginate Dressings

Antimicrobial Dressings

Collagen Dressings

Contact Layer

Foam Dressings

Honey Dressings


Impregnated Gauze Dressings

Keratin Products

Retention Dressings

Specialty Absorbent Dressings


Topicals, Ointments & Creams

Get in touch with the EB Team

Call: 855.5EB.line   Send us an email   Fax: 877-651-1957